New parent’s never expect to up end in the NICU with their baby, having to turn over care of the most precious member of their family to strangers. Whether having the opportunity of a NICU Tour, or walking into the NICU for the first time, it is overwhelming and anxiety, fear of the unknown, frustration, and feeling out of control can be all consuming. Unfortunately, this is the beginning of the NICU Journey.
However, other families have gone before and are working to transform the NICU journey parents travel from the first days in the NICU to discharge home. They are joined by dedicated a healthcare team in the NICU who seek to listen to concerns, inform families of daily events as well as what might be expected in the days ahead while in the NICU. Often unknown by families, is that there is a community of support and healthcare team waiting to continue families support after discharge.
Special Kids, Special Care, is focused on creating a community of support for families of premature babies and babies who need special care through the early years of their parent journey.
Special Kids, Special Care?
Over 40 years of joining with families as they experience the NICU Journey of having their baby in the NICU. We are striving to create a community of support and resources so that families do not feel alone, they know how to access and utilize services that will support their families ability to not just survive, but to thrive.
Building relationships though trust, compassion, integrity, cultural sensitivity, and shared goals.
Creating a community of support for families of premature babies and babies who need special care that is culturally responsive, competent, and relevant to their needs.
Engaging families and community partners to increase awareness, advocate and collaborate in order to transform the NICU parent experience.
Barbara J. Deloian, PhD, RN, CPNP, IBCLC
Special Kids, Special Care Inc.
Board of Directors:
Renee Charlifue-Smith MA, CCC-SLP
Department of Pediatrics, University of Colorado School of Medicine
Associate Director, Shire.
Paul Egan CPA
Egan Ravarino, LLC.
Pegasus Communications, LLC
Sarah McNamee, LCSW, MBA
Owner, McNamee and Associates, LLC
Paulina Erices, IBCLC
Maternal and Child Health Specialist
Jefferson County Department of Public Health
Barbara J. Deloian, Ph.D., CPNP, IBCLC
Paulina Erices, BS, IBCLC, RLC IMH-E® Infant Family Specialist
Sarah McNamee, LCSW, MBA, IMH-E (Mentor)
Chris Russell, BSN, Certified NCAST and PIPE Instructor