The following lists a variety of resources that are valuable to families.
HCP – A program for infants, children, and youth with special health care needs
Or call: 303-692-2370
By reviewing a family’s questions, needs, and resources public health nurses help to identify the appropriate community services and resources for them and help them coordinate care with the child’s health care providers, therapists, and other providers.
Families First Statewide family Support Line
1-800-CHILDREN and 1-866-LAS-FAMILIAS
Families First has been serving Colorado families with programs and resources to strengthen families by empowering parents and nurturing children in a non-judgmental way, since 1986. Families have access to our Support Services in both English and Spanish:
- Parenting education classes
- Circle of Parents®/Circulo de Padres® support group
Breastfeeding Management Clinic at Children’s Hospital Colorado
The Breastfeeding Management Clinic provides a comprehensive approach to breastfeeding challenges for the baby and family. We can support any mother and baby having challenges (e.g. low milk, sore nipples) with breastfeeding from birth through older children (e.g. weaning). We see self-referrals, as well as, referrals from community physicians, birth centers and other lactation programs. Our “Trifecta Team” (pediatrician with breastfeeding expertise, lactation consultant and psychologist) offers a unique multidisciplinary team of services for a comprehensive breastfeeding evaluation of both mother and baby. It is covered by most insurance companies so only their copay is required.
Behavioral Health Centers
Mental Health Consultation addresses the social and emotional needs of infants, toddlers and preschool children and their parents through a trusting relationship, education, and support.
Early Intervention Colorado
Early Intervention Colorado (EIC) is a state wide program that provides early intervention services to children birth to 3 years of age who meet specific eligibility criteria. Family members, health care providers, and other community members are able to make a referral on behalf of a child. Services are most often provided in the home.
Feeding Matters provides parents with information about feeding challenges that parents may face as well parent resources such as the Feeding Matters® Infant and Child Feeding Questionnaire©, authored by internationally recognized feeding experts. This ground-breaking tool will enable medical professionals, including neonatologists and pediatricians, to partner with parents to identify pediatric feeding struggles earlier, prompting an opportunity for further assessment and more effective treatment. Feeding Matters Questionnaire. By entering the child’s birth date and any information on early birth, the website will provide them with appropriate questions to answer so that they can share this information with their primary care provider.
Colorado Health Care Policy and Financing (HCPF)
- Medicaid Nurse Advice Line – 1-800-283-3221
- Health Communities Outreach 1-800-221-3943
Assists families navigate the Medicaid system as well as non-Medicaid systems.
Connect for Colorado
Offers a statewide customer support network of Customer Service Center Representatives, Health Coverage Guides and licensed agents/brokers to help Coloradans find the best health plan for their needs.
Social Security Disability
Children who were born prematurely may qualify for disability benefits through Supplemental Security Income (SSI). Determination is based on the infant’s birth weight. There are also income requirements that must be met to qualify for SSI benefits.
Provides assistance to families of children, birth and beyond, who have special health care needs around challenges with insurance coverage and denials, community resources, and advocacy for their children.
Nurturing Newborns, LLC offers short term respite services to families with infants and children. They offer education, consultation services and in home care of families including overnight support. They nurture the entire family for a minimal cost, and they specialize in respite care for children of ill or overwhelmed parents.
PASCO (Personal Assistance Services for Colorado)
Offers full complement of services (Skilled Nursing, CNA, Pediatric Hospice/Respite, Personal Care, IHSS) as well as its comprehensive back-up system throughout Colorado’s Front Range.
Colorado Bright Beginnings
Provides parent resources to empower parents by providing guidance, knowledge, and tools to create bright beginnings for their child. Volunteers meet with parents at home, work, or other community settings to support and guide parent skills.
Fussy Baby Network Colorado
Provides the Fussy Baby Warm line for parents to call and receive support and guidance about their infant’s crying with the possible option for a home visit with a Fussy Baby Specialist.
El Grupo VIDA
Provides information, referrals, and support for Spanish speaking parents.
Applications – www.colorado.gov/pacific/cdphe/wic-families
WIC (Women, Infants, and Children) provides nutrition education, breastfeeding support, healthy food, health referrals and other services free of charge to Colorado families who qualify.
NICU Moms of Denver
This is a support group/social meet-up for mothers who were separated from their babies at birth due to prematurity or other complications (either mom or baby). I hope this group can serve to connect women in need of support, community, and friendship.
Hand to Hold
Hand to Hold, a nonprofit 501(c)3 organization, carefully matches seasoned parents of preemies (Helping Hands) with parents in need of support. These peer-to-peer relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience of preterm birth, life in the Neonatal Intensive Care Unit, a child born with special health care needs, loss of pregnancy and/or infant loss.
Parent 2 Parent Colorado
Parent to Parent offers encouragement to one another on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking support with a support parent
PEAK – COLORADO’s Parent Training/Information Center (PTI)
Provides information and training for parents on different types of disability, parenting issues, as well as training for parents.
Special Information For Parents of Preemies
Premature babies as well as other babies discharged from the NICU are at greater risk of Sudden Infant Syndrome (SIDS). Therefore we want their parents, as well as the parents of all babies, to understand how they can assure “safe sleep” for their babies. To learn more check out these web sites.
- Healthy Children: http://www.healthychildren.org/English/ages-stages/baby/sleep/Pages/A-Parents-Guide-to-Safe-Sleep.aspx
- National Institute of Health: https://www.nichd.nih.gov/publications/pubs/Documents/Safe_Sleep_Baby_English.pdf
We want to support parents who wish to avoid smoking around their baby because of the harmful effects it has on both the baby’s current health as well as future health. These two resources are available to provide parents with assistance in their efforts.
- The EPA has information to share about how smoking effects the health of children and babies http://www.epa.gov/smokefree/
- The Quit Smoking Communityprovides information on smoking and its effects as well as tips on how to quit smoking. http://quitsmokingcommunity.org/